{"product_id":"how-to-tell-when-we-will-die-on-pain-disability-and-doom","title":"How to Tell When We Will Die: On Pain, Disability, and Doom","description":"\u003cdiv data-a-expander-name=\"book_description_expander\" data-a-expander-collapsed-height=\"280\" class=\"a-expander-collapsed-height a-row a-expander-container a-spacing-base a-expander-partial-collapse-container\" style=\"max-height: none; height: 280px;\"\u003e \u003cdiv data-expanded=\"false\" class=\"a-expander-content a-expander-partial-collapse-content\" style=\"padding-bottom: 20px;\"\u003e \u003cspan class=\"a-text-bold\"\u003eFrom one of the most influential voices in disability activism comes an essay collection that detonates a bomb in our collective understanding of care and illness, showing us that sickness is a vibrant part of life. \u003c\/span\u003e\u003cspan\u003e\u003cbr\u003e\u003cbr\u003eIn the wake of the 2014 Ferguson riots, and sick with a chronic condition that rendered them housebound, Johanna Hedva turned to the page to ask: How do you throw a brick through the window of a bank if you can‚Äôt get out of bed? It was not long before this essay, ‚ÄúSick Woman Theory,‚Äù became a seminal work on disability, because in reframing illness as not just a biological experience but a social one, Hedva argues that under capitalism‚Äîa system that limits our worth to the productivity of our bodies‚Äîwe must reach for the revolutionary act of caring for ourselves and others. \u003cbr\u003e\u003cbr\u003e\u003c\/span\u003e\u003cspan class=\"a-text-italic\"\u003eHow to Tell When We Will Die \u003c\/span\u003e\u003cspan\u003eexpands upon Hedva‚Äôs paradigm-shifting perspective in a series of slyly subversive and razor-sharp essays that range from the theoretical to the personal‚Äîfrom Deborah Levy and Susan Sontag to wrestling, kink, mysticism, death, and the color yellow. Drawing from their experiences with America‚Äôs byzantine healthcare system, and considering archetypes they call The Psychotic Woman, The Freak, and The Hag in Charge, Hedva offers a bracing indictment of the politics that exploit sickness‚Äîrelying on and fueling ableism‚Äîto the detriment of us all. \u003cbr\u003e\u003cbr\u003eWith the insight of Anne Boyer‚Äôs \u003c\/span\u003e\u003cspan class=\"a-text-italic\"\u003eThe Undying \u003c\/span\u003e\u003cspan\u003eand Leslie Jamison‚Äôs \u003c\/span\u003e\u003cspan class=\"a-text-italic\"\u003eThe Empathy Exams\u003c\/span\u003e\u003cspan\u003e, and the wit of Samantha Irby, Hedva‚Äôs debut collection upends our collective concept of disability. In their radical reimagining of a world where care and pain are symbiotic, and our bodies are allowed to live free and well, Hedva implores us to remember that illness is neither an inconvenience or inevitability, but an enlivening and elemental part of being alive.\u003c\/span\u003e  \u003c\/div\u003e \u003cdiv class=\"a-expander-header a-expander-partial-collapse-header\" style=\"opacity: 1; display: block;\"\u003e\n\u003cdiv class=\"a-expander-content-fade\"\u003e\u003c\/div\u003e\n\u003ca href=\"javascript:void(0)\" role=\"button\" data-action=\"a-expander-toggle\" class=\"a-declarative\" data-a-expandev\u003e\u003c\/a\u003e\n\u003c\/div\u003e\n\u003c\/div\u003e","brand":"Hillman Grad Books","offers":[{"title":"Default Title","offer_id":50340138287389,"sku":"9781638933533","price":13.95,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0901\/5692\/5213\/files\/9781638933533.jpg?v=1757515903","url":"https:\/\/bookdelico.com\/products\/how-to-tell-when-we-will-die-on-pain-disability-and-doom","provider":"Book Delico ","version":"1.0","type":"link"}